I just had my 20 week ultrasound yesterday, and they saw a severe heart defect - hypoplastic left heart. Basically, he has half a heart - the left side is not developing. “Best” case scenario is a 70% chance of surviving to age 5, and that’s only if he receives a heart transplant or a series of 3 open heart surgeries by age 4. Even if he did survive to age 5, he would likely need a pacemaker and additional heart transplant later. There would also be many other complications and co-occuring problems in other systems in his body.
This is so awful and sad, and I am learning about second trimester pregnancy termination.
This may have been my only chance at having a baby. I have three frozen embys, but my husband was against having kids, and I don’t know how likely it is that I will get to try again. This type of scenario was a the main reason he was against the idea in the first place.
I literally set up his nursery the DAY BEFORE the ultrasound. I am devastated and confused. I am really scared about what the procedure would be like.
I have an appt with a cardiologist today to learn more, but I’m expecting to not hear anything positive.
Is this topic too horrible for this forum? I’m not sure where to post.