Diagnosis Stories?


#1

[FONT=Arial Narrow][SIZE=3]How is PCOS diagnosed? I am quite certain that I too suffer from this common syndrome. I have a lot of the symptoms. I find that doctors do not listen to me, when I express my concerns. So, currently DH and I are in search of a new OBGYN. I expressed that I was concerned about PCOS to one dr and was told my features are too “womanly” for this to be the case. I find that incredibly wrong. While I am sure this doctor is educated, I believe they were incorrect. In my experience I have come across women who have PCOS and all are still very womanly. I seen another doctor when we started our journey of TTC, we spent a lot of money (Not nearly the amount as some of you, but a lot none-the-less), time, and hope on this process only to come out empty-wombed & broken hearted. While, I understand the doctor is not at fault for my flawed body. I am annoyed that I was not taken seriously when expressing my feelings and thoughts. I told him about my self diagnosis of PCOS and he shrugged me off, never addressing the subject. I know that no doctor appreciates a self diagnoser but, aren’t we all guilty of becoming google obsessed?? I don’t think this is me being a hypochondriac . I truly believe I am a woman with PCOS. How is PCOS diagnosed is my question? Maybe someone can share their story from when they were diagnosed? Can anything be done to help with this? [/SIZE][/FONT]


#2

Pcos

I dont know how they diagnois PCOS besides symptoms. I know that I have had many issues after my c-section, although many docs say nothing is wrong. I hope you find your answer. I do believe that we know our bodies and when somthing is not right.


#3

Thanks, too bad dr’s don’t always see it that way! I agree though. Good Luck to you!


#4

Pcos

Thanks! Best of luck, and of course I hope you are wrong and you get a :bfp:


#5

PCOS has a lot of symptoms that are associated with it. Dr. Google can provide a couple of quick checklists that are obvious signs (which it sounds like you’ve consulted) - but there are internal signs as well. PCOS messes with your hormones, so they can do bloodwork to test for certain elevations. And, of course, there’s what gives it its name: ovarian cysts. I was diagnosed by my ob/gyn after she did bloodwork; if yours isn’t even willing to consider the possibility (self-diagnosis or no) then your best bet is to look for a new one who is willing to give you a more legitimate answer than “womanly features.”


#6

I agree, thank you. Yes, I have read a lot online and in many books. I have had a lot of blood work done but none specifically testing for that. My main concern for seeking a dr while TTC was that my cycles are irregular. When I say irregular I don’t mean they are off by a few days or come every other month… I mean… without medicine I do not have a period on my own. Ever. Having this… I knew it would be hard to conceive. I underestimated how hard. I will be seeking the help of a doctor, maybe one who cares about what I have to say this time. Between lack of periods, weight gain, and the other unpleasant, and very unwanted symptoms I think I have the right to be concerned. Thanks again.


#7

I was also someone who had symptoms for years but went undiagnosed. There are three criteria and you must meet two for a diagnosis: (1) anovulation or less than 9 periods per year, (2) excess androgens either by blood test or clinical presentation (oily skin, acne, increased hair, etc.), and (3) polycystic appearing ovaries on u/s.

I was never diagnosed because although I had signs of excess andrgoens, I have normal cycles. No doctor wanted to diagnose me with normal cycles. When I switched REs, the new one took a look at my ovaries and said I met two of the three criteria and called it ovulatory PCOS. This syndrome is also very related to insulin resistance, so some doctors base a diagnosis on that. You need to be an advocate for yourself and tell the doctors exactly what you think. Go to every appointment informed and a good doctor will respect you and not just see you as a self-diagnoser. I know how frustrating it is to feel overlooked for so many years, even by fertility specialists. But you have to do your research and be informed. If I’ve learned anything in this process, it is that we know our bodies best.


#8

Thank you. It’s nice to know that I am not the only one who has been over looked. I know I have 2 out of the 3. I do not know if I have the cysts on my ovaries as I cannot see them myself lol. I am definitely going to bring this up on my appointment. Which, I still need to make. Anyone have any ideas on how to word this when making an appointment? I’ve never been to this dr before, but my MIL seen her and really liked her so I am going to give her a shot. And, since my last dr was a man, maybe now that I have a woman she will be more sensitive and concerned. Seeing as how she understands the importance of a period, etc. Should I just call and say I would like to talk to a doctor about the possibility of having PCOS?


#9

That sounds like a good place to start. If your new OB thinks it’s likely that you have PCOS, she can also refer you to a fertility specialist. I was seeing mine for about two years before we started TTC. You may want your OB to care for your PCOS or you may want to ask for a referral to a fertility doc/RE. It’s something you should talk over with her. Either one should be able to diagnose and treat you, but since you’re already TTC, a fertility specialist is in a great position to monitor your whole fertility picture and address it, whereas an OB is limited in their resources and knowledge about treating fertility problems. Give it a thought! And yes, I had an OB when I was in the Air Force who just told me, “Well, you might have PCOS but there’s no way to know,” when in fact both my civilian OB and fertility specialist were able to diagnose me with confidence. Some docs are just know about it better than others. Hope the new OB works out for you!