Um, I’ve never really joined forums before…so I’ll just get to the point. Well, here goes:
I feel like I do not have control over my own body. I have no idea why I am like this, and I feel like no one really understands. I don’t know anyone else around me who has problems like I do.
I know this is a site about infertility, and I would like to have a baby some day, but not right now. I stumbled upon this site by googling “high prolactin levels with normal mri.” I am just looking for people who have the same problems I do.
Heres how the problems began:
Well, for as long as I can remember I have always had an irregular period. When I was a teenager, I never thought that I might not be able to have a baby, or it didn’t sink in.
I remember when I was 14, I was so scared because my period would not come on but every 3 months. I knew that this wasn’t normal. What made it even more awkward is that I was raised by my dad, and my “mother” has never been in my life. So I had to ask my dad to take me to the doctor. He called a gynecologist and made an appointment. Now me being 14, I was very scared, I didn’t know what to expect going into the doctor’s office. I had some lady, and I remember sitting in there waiting and when she came in she just asked me a bunch of questions about my period. She told me that i could get cancer if my period didn’t come on or something of that nature. She gave me two options, i could take birth control or take some pill that will make your period come on. Well at the time I thought birth control would make a woman infertile, so i chose the other pill. I was prescribed these white pills, and I took a blood test that day as well. Well, my dad was taking all the calls from the doctors and what not, as I was only 14. The blood test came back and I went to the doctor again, and the lady said i was not producing enough female hormone…whatever that means. She then referred me to get an MRI. Well I did that, and I remember I went in this scary dark machine, that made all these scary noises. It was horrible.
A week later the results came back normal. My dad at this point was irate. He, being a single parent, did not like spending all this money at the doctor when it appeared nothing was wrong. So I’m not sure if I was supposed to go back to the gyno, but I remember they wanted me to get another MRI the next year and my dad was like “heck no your not going”, so I didn’t go. Well, the white pills seemed to be working for a while, my period was back to normal for a while.
I only remember one time where my period hurt so bad i thought i was going to pass out. I was in a math class in high school, and i had a male teacher. I was hurting so bad I felt dizzy. I had to ask the male teacher for a pass to the bathroom, and it seemed like an eternity for him to write it. Ugh, finally I was at the bathroom, and I just sunk down on the dirty floor, hurting bad. I stayed in there the rest of the class. It never hurt that bad ever again.
Another minor detail is I remember in high school, I became obsessed with getting on the internet at lunch, and for a few years, I wouldn’t eat lunch, I wouldn’t eat until I went home because I used my lunch break to get on the computer. I was at my skinniest at this point of my life. I did this until one day I almost passed out at school, I almost blacked out but I got up and made it back to a classroom to lay down. After that i started eating lunch!
Well senior year, I started working at mcdonalds. This is when my weight problems started. After I graduated I didn’t go straight to school, I worked at McDonalds for 3 years, and I was so poor, but I didn’t go hungry because I always had something to eat. I wasn’t really paying attention to my weight. I didn’t really care.
Eventually enough was enough of that place and I found a new job working in a factory. My period was still irregular but I didn’t worry about it much.
My weight was at 200 lbs at this point.
Well I didn’t realize anything was wrong until last year my period was being irregular again, coming on every 3 months. I went to my new gyno, a man, and got a blood test. I also started taking birth control to make my period come on. The blood test revealed elevated thyroid levels, so he started me on medication for that and referred me to an endocrinologist.
Now, in my town, there is only one endocrinologist. I had never heard of this type of doctor before. When the nurse on the phone told me had i ever been to an endo, i was like “no what’s that?” and she told me it was a doctor that dealt with kidneys. I thought, “what does my kidneys have to do with irregular period?” Boy I had no idea what I was about to get into. I had a choice to go to the one in town or go to one 2 counties away. I chose the one in my town!
Well, I went to the endo, and he upped my dosage of thyroid medication (after seeing results of a new blood test). That was a normal visit. The next visit was when all the drama started to begin.
The next visit was when he laid it all on me. I hadn’t lost any weight, so he threw that in my face again. And then he told me he was putting me on metformin to help me lose weight. He upped my thyroid medication again.
I only lost 10 pounds from the metformin. I read on my paper from the previous visit that i had high glucose. He didn’t explain that to me in the visit, just said he was prescribing the metformin to help me lose weight. Correct me if i’m wrong but isn’t hyperglucose type 1 diabetes? He was happy about me losing weight.
I had a few visits of him just upping my thyroid and now all of a sudden he started talking about my prolactin levels are still high and he constantly asks me am I taking my thyroid medications. What does prolactin have to do with thyroid medicine? Prolactin comes from the pituitary, which he didn’t even explain to me, I googled. Well eventually it came down to me having to take an MRI, which i did last week. Haven’t met my deductible yet for my insurance. Well the MRI came back normal.
So why are my prolactin levels still high? This is what I will ask when I go.
My doctor is a very busy man. He sort of gets on my nerves. I feel like just a number. He will come in, not even say hi, and its like he wont even try to understand me. I know he has a million patients because he is the only endo in town. I can’t afford to drive all the way to another doctor really. He comes in and looks at the computer and then will not really explain things to me. I end up googling stuff to find out. I get a print out at the end of each visit, and there will be things on there that he didn’t tell me about, like symptoms of pcos and pituitary hyperfunction. Like, all he talks about during the visit is eating healthy and losing weight. He doesn’t explain things to me. I remember he asked me is there a history of hyerthyroidism in my family, and I told him I don’t know. Its like he didn’t want to take no for an answer. He doesn’t understand that families are dysfunctional. I don’t know my mother or anyone on that side of the family, and im not close to my dad’s family, neither is he really.
I try not to make excuses, but he don’t understand how hard it is to quit cold turkey and stop eating junk and drinking sodas. He talks to me like I can just quit and lose weight. I have tried a million times to start exercising and eat healthy foods, but I feel stressed and soda and candybars make it better.
I am currently enrolled full time in college, 5 classes (so i can keep getting financial aid) and working fulltime…I don’t really have time to exercise, but I try to make small changes, like parking my car far away so i can walk.
I didn’t realize I had so many problems, and I feel like I don’t understand, how do I get the doctor to stop treating me like a number? I cant afford to go far away to see a new doctor.
I feel so lost and like i have no control over my own body. I feel like, since when did it come to all this? Why can’t i be normal. And i realize that it will be hard to have children most likely. By the way, my endo also always asks me each visit when I am going to have children, and i always tell him not now, i mean, it says on his computer i am taking birth control!
I guess I’m just looking for some peice of mind. I have always been the only girl in my family, and the only girl I know who has these kinds of problems. Its like i have to just sit here and think about it myself and no one understands.