[QUOTE=Tinkerbell82]I haven’t started any treatment yet. I don’t have periods so my ovulation can’t be tracked, or my fsh levels.
I have been put on provera and given a hcg injection to try to kick start me but nether worked.
The only way I have a period is on the pill.
It’s real nice to hear all the success story’s it gives me hope. Just get real frustrated as no one knows why I don’t have periods and with out them I might not be ovulating.
I’m at a great ivf clinic and the staff are lovely. Just hate the not knowing what’s wrong gets me down.[/QUOTE]
I, too, don’t respond to provera and don’t have periods on my own. I know how frustrating it can be, because everyone else has a “day 1” and can rely on things like E2, FSH levels, etc. but we can’t because we really don’t have a cycle! Have you always had this problem? I’ve been on the pill to have a period since I was 16.
Random question…how is your sense of smell? That’s my issue, and it took me years to find an RE that put two and two together. I have no sense of smell because I’m missing part of my olfactory bulb, which doesn’t allow my brain to connect to my ovaries.
Next question…have you had your FSH/LH checked recently? I can’t remember if you had. For me, my FSH is normal but my LH is ridiculously low. My progesterone is also basement low. Even though I have enough FSH to start making follicles, I don’t have enough LH to mature and ovulate those follicles, and don’t have enough progesterone to create and support a uterine lining. Maybe worth asking about for you?
If you do have a disconnect between your brain and your reproductive system, there IS treatment and it’s very successful. They will skip you over Clomid (it does nothing) and move you right to injectables which DO work! Our first child was conceived with injectables and timed intercourse, and this time we did IVF just because of overstimming issues, but got pregnant on the first try.
Not sure if our issues are exactly the same, but hoping my story will cheer you up a bit and let you know that you are NOT alone and that there most likely IS a diagnosable reason and treatment is possible/successful!!
If you are just going to an ordinary doctor, I would strongly suggest you seek your best local specialist. It took me years to find someone that was able to figure out my issue, and I spent a lot of time wondering what was wrong with me, feeling like we couldn’t even get started because I didn’t know what was causing my issue, feeling different from everyone else, worrying that I was completely infertile, etc. I even had TWO doctors in high school tell me I was pregnant because I didn’t respond to the provera…which was before I was sexually active and very embarrassing. Find a good health care provider and best wishes!! Please feel free to private message me for support, and keep us posted on your progress!!