Update on consult with urologist and Turek
well here is my update. We had an eventful day.
Meeting with general urologist: gave us no hope. Said we should consider adoption. Said it was likely genetic. Because FSH and lh were both high, and testosterone low, quickly ruled out obstructive. Said we shouldn’t try to increase or supplement with testosterone as that would shrink the testicles by sending a message to body that he doesn’t need to produce testosterone. Basically, DH is not at risk of anything, including cancer, but also not able to produce sperm. He said he could do a biopsy but in cases like this there is no reason to as they already know it’s not fixable.
We left there very down, very very down.
Then, we did our short phone consult with dr. Turek. The first thing he said was that DH likely had Klinefelters. He said sperm is found 70% of the time with KF. He said he would like us to get genetic testing and also do the pellet centrifugal semen analysis and also get tested for estradiol. Depending on results, he might consider some ways to prepare DH prior to MTese. He had something he would prescribe to naturally increase testosterone, i think. Also he said in our case he wouldnt
recommend FNA mapping, he would go straight in with the MTese. So this was very interesting. He said the risks of mTese are not that great
and in fact, either way DH will likely have to go on testosterone therapy later in life. But the take away was, we do have a shot, and our odds may not even be that bad.
Then, I got an email back from dr. Schlegel, who also concluded it was genetic, wanted genetic/chromosome testing, and said at this time, (he didn’t know about DHs low testosterone, so that was his one qualifier) but Schlegel gave us a 55% chance of finding viable sperm.
Well, this is a lot to think through! Basically, I think Turek and Schlegel will come to the same conclusion. Then we would have to decide, are we going forward with the procedure, and if so, which doctor would we pick? Anyone gone through this already? Turek is much more geographically desirable…he is in California and so are we, while Schlegel is in NY. But who is better set up for ivf and icsci?
Well that is my update. Just wanted to let people know.