No sperm ... We found the right DR


#1

Hi Forum Friends ,

My husband and I have had a long journey but it has not been easy…we were successful with our first IVF but all due to our Dr Paul Turek … this is our story
Male Fertility Success Stories and Patient Testimonials

He has a new procedure that is less invasive using an u/s to help with mapping. Please do not trust just anyone with your testicles…only trust the best. He is so worth a consultation and a nice trip to San Fran.

If you have questions me or my husband would be happy to share anything. Or call Dr Tureks Clinic.:grouphug:

Sincerely, Minamimbs

We are currently starting our first FET since the birth of our daughter 12/2009.


#2

Hi

It’s so encouraging to read your success story. I would love to hear more about your journey and your husband’s history with regards to his azoospermia.

My husband has just had surgical sperm retrieval and they found 3 healthy, developed sperm, but under NHS criteria, that’s not enough to freeze for and ICSI cycle. So we also came across Dr Turek’s website.

Any info greatfully received!
Deb x


#3

more details

HI Deb111

First, I wanted to give a big hello!! You are already one step closer to your dream by reaching out to others and seeking advice and searching for solutions. Do not depend on others like drs or medical staff to change your life. ( my husbands urooogist told us on the second visit we should lok into adoption). The person who will make your dreams of having a family come true faster are you and your husband not waiting but seeking the solution. ( I would not settle of adoption just because 3 SA came up with zero sperm) I went to my ob and he refered us to Dr Turek and we were off. Because of my husbands born condition it was clear that we were never going to see sperm the natural way. I jumped right into the list of procedured to rule everything out. Last one was gentic counseling and once we were cleared that his lack of sperm was from a genetic reason. We moved forward to the mapping. This was about 20-30 samples from each testi and 2 weeks later we got the call that there were sperm not many but a few. So we scheduled my IVF procedure in the same building as Dr Tureks office and lined up my DH’s procedure. Dr decided to only use on testicle the one that had more sperm and dr removed tissue and was able to extract 2 cycled worth of tissue with sperm in it. We had 30 eggs - 25 fertilitzed and 2 fresh/3 frosties. And 4 viales frozen sperm/tissue for one more fresh cycle. Dr T has a mapping procedure that uses and ultra sound and may not need as many needles to sample the tissue. I highly recommend get his opinion…! We have become very close over the years.

What kind of surgery did he have? Please ask me specifc questions if you have any? Where do you live? I will be in SF on Tuesday in the same building as DR T.
:nerd:

[quote=Deb111]Hi

It’s so encouraging to read your success story. I would love to hear more about your journey and your husband’s history with regards to his azoospermia.

My husband has just had surgical sperm retrieval and they found 3 healthy, developed sperm, but under NHS criteria, that’s not enough to freeze for and ICSI cycle. So we also came across Dr Turek’s website.

Any info greatfully received!
Deb x[/quote]


#4

Thanks for your reply :slight_smile: We’re in the UK.

My hubby has TESE but they just take a ‘pot luck’ sample with no idea of whether or not they will hit a small area of sperm or not. They said they could repeat it in 6 months time but we’re not happy about it just being a random chance of hitting a good area again, which is why we were looking for something more scientifically based.

We actually had a phone consultation with Dr Turek yesterday who was very nice and thrilled when we said the TESE procedure had found 3 spem - he was really positive about the fact that hubby is clearly making ‘some’. However, when he asked what they’d done with those 3 sperm - as in frozen them or used them fresh - and we told him they had just got rid of them, he was horrified! We told him the NHS criteria is minimum of 100 and he said in azoospermia cases, he would see finding 100 as hitting a real goldmine, not a lower limit!

He has sent us the forms to set up a second opinion and we are going to get our test results to him and take it from there. We can’t really afford a visit to, and treatment in the US, but we feel we have to give this one last go.

He says he will most likely put hubby on clomid (which when I had researched and mentioned to our FS and doctor, they just fobbed me off and told me it’s just for women!) He also said it’s possible that after 3 months in clomid, hubby ‘may’ be able to produce a sperm sample with enough sperm in to retrieve for IVF/ICSI - which would be wonderful!

He really has been the first person in a long time to give us positive news and to make us feel we are perfectly justified in wanting our own biological child, rather than being made to feel we’re making too much of it all and should accept using donor sperm as our only option and just get on with it!

He can’t do the procedure for 6 months as hubby has to physically recover properly from his last op, but I have some weight to lose for IVF and we have to get saving hard!

Deb x


#5

I am way over here in MA otherwise I would call this doctor he seems great!


#6

he is worth a call!!!

HI Boodles,

Please don’t think just because he is in SF he can’t help you over the phone!!! If you read the message above they are in the UK and did a phone consult…he is inspiring, a pioneer and has answers and hope. He can guide you to other drs that he works with across the country that are willing to consider his perspective. If there is a will there is a way!! Sometimes I have found cheep flights from MA to SF or close surrounding cities on Southwest Airlines.!!

I just got back in the hour from driving 4 hrs round trip for a 10 min appointment in the same building (Pacific Fertility Center) as Turek clinic!! This is the same fertility clinic that Turek and his wife used to have there children…yep I said it the Dr/wife is in the same shoes as his pateints…his daughter is just about 2 years old now. There are also cheap hotels near the airport and shuttles or busses that take you into the city. My husband and I would even help you if you needed to find things or places more specific via pm.

Please consider a call with him…I see that you have your husband have done a lot of the years and all of this is very fresh. We have become very close with Dr and his Staff they are like family…no they are family because we wouldn’t have one with out them!!! I hope this message finds you well and if you want to pm me or email I would be more than happy!!
Sincerely Lisa and David


#7

clomid

:clap:
HI Deb!!!:clap:
I am so pleased to hear that you both were able to talk with him!!! He is a very optimism guy and really has the statistics/experience behind it! My husband was on claimed too! We were able to get sperm enough for to IVF cycles so there is hope!!! I am so sorry that your husbands dr didn’t save the sperm. It is so disappointing to hear that many drs just want to work with people on a specific part of the the spectrum. Start spreading the word that there is hope…Dr T is hope!! my husband had a lot of scar tissue from his FNA mapping…so when they went to get their sperm they used the actually tissue from the testicle to get the sperm out…sounded like a long shot but our daughter is living proof that Dr T knows what he is talking about and just because 1 or 2 drs tell you one thing…there is always hope…there are only a couple reasons that someone wouldn’t have any sperm are very specific and if a person doesn’t have those characters than Dr T could probably get’em!!

Cheers to optimism

[quote=Deb111]Thanks for your reply :slight_smile: We’re in the UK.

My hubby has TESE but they just take a ‘pot luck’ sample with no idea of whether or not they will hit a small area of sperm or not. They said they could repeat it in 6 months time but we’re not happy about it just being a random chance of hitting a good area again, which is why we were looking for something more scientifically based.

We actually had a phone consultation with Dr Turek yesterday who was very nice and thrilled when we said the TESE procedure had found 3 sperm - he was really positive about the fact that hubby is clearly making ‘some’. However, when he asked what they’d done with those 3 sperm - as in frozen them or used them fresh - and we told him they had just got rid of them, he was horrified! We told him the NHS criteria is minimum of 100 and he said in azoospermia cases, he would see finding 100 as hitting a real goldmine, not a lower limit!

He has sent us the forms to set up a second opinion and we are going to get our test results to him and take it from there. We can’t really afford a visit to, and treatment in the US, but we feel we have to give this one last go.

He says he will most likely put hubby on clomid (which when I had researched and mentioned to our FS and doctor, they just fobbed me off and told me it’s just for women!) He also said it’s possible that after 3 months in clomid, hubby ‘may’ be able to produce a sperm sample with enough sperm in to retrieve for IVF/ICSI - which would be wonderful!

He really has been the first person in a long time to give us positive news and to make us feel we are perfectly justified in wanting our own biological child, rather than being made to feel we’re making too much of it all and should accept using donor sperm as our only option and just get on with it!

He can’t do the procedure for 6 months as hubby has to physically recover properly from his last op, but I have some weight to lose for IVF and we have to get saving hard!

:dance: :dance: :dance:

Deb x[/quote]


#8

Thanks for your reply Lisa, I am going to look into that. It’s nice to have hope and options again.


#9

Azoo

I am just now reading about the great success with dr. Turek. For those with success, may I ask what your dh’s FSH level was? Mine has a 58 and I am concerned at how high it is.

Thank you for any advice. We are in California also and have a phone consult with Turek next week.


#10

Micro tesa

Hi Lisa
Have you heard of micro tesa surgery? This is much more scientific than a needle biopsy. Unlike the biopsy this is a procedure which looks inside the testes. If there is sperm there they will be able to find it. This is our only hope. We have thankfully been able to find a doctor in aust who is willing to perform the procedure. They will only operate on one teste as there is a risk of losing it should there be a complication. We are praying this will work for us. Test results so far show 0 sperm but the cross section is so small we have hope there is more going on.


#11

Update on consult with urologist and Turek

Hi all:
well here is my update. We had an eventful day.

Meeting with general urologist: gave us no hope. Said we should consider adoption. Said it was likely genetic. Because FSH and lh were both high, and testosterone low, quickly ruled out obstructive. Said we shouldn’t try to increase or supplement with testosterone as that would shrink the testicles by sending a message to body that he doesn’t need to produce testosterone. Basically, DH is not at risk of anything, including cancer, but also not able to produce sperm. He said he could do a biopsy but in cases like this there is no reason to as they already know it’s not fixable.

We left there very down, very very down.

Then, we did our short phone consult with dr. Turek. The first thing he said was that DH likely had Klinefelters. He said sperm is found 70% of the time with KF. He said he would like us to get genetic testing and also do the pellet centrifugal semen analysis and also get tested for estradiol. Depending on results, he might consider some ways to prepare DH prior to MTese. He had something he would prescribe to naturally increase testosterone, i think. Also he said in our case he wouldnt
recommend FNA mapping, he would go straight in with the MTese. So this was very interesting. He said the risks of mTese are not that great
and in fact, either way DH will likely have to go on testosterone therapy later in life. But the take away was, we do have a shot, and our odds may not even be that bad.

Then, I got an email back from dr. Schlegel, who also concluded it was genetic, wanted genetic/chromosome testing, and said at this time, (he didn’t know about DHs low testosterone, so that was his one qualifier) but Schlegel gave us a 55% chance of finding viable sperm.

Well, this is a lot to think through! Basically, I think Turek and Schlegel will come to the same conclusion. Then we would have to decide, are we going forward with the procedure, and if so, which doctor would we pick? Anyone gone through this already? Turek is much more geographically desirable…he is in California and so are we, while Schlegel is in NY. But who is better set up for ivf and icsci?

Well that is my update. Just wanted to let people know.


#12

Good news

I’m so pleased to hear that you have some hope! The urologists are not fertility specialists!! It’s amazing what the specialists can do now.
I was pleased to hear the stats of sperm retrieval rates in a man who has Klienfelters, 70 percent is great! My dh has the same. Doctors here in aust have given us a 50 percent chance in finding sperm. I wonder if Mtese is performed more often in the US? The retrieval rate is increased by the skill of the surgeon as it is such intricate work. I have a great article on this given to us by a top ivf surgeon. We are yet to go through it. I hope the procedure is not too painful for my dh. Dcts have told us he will need at least one full week, complete bedrest lying flat, to recover. Has anyone else been through this? Will my dh need longer off work to recover?

All the best in your decisions


#13

We saw Dr Turek last year after my husband’s semen analysis came back with zero sperm.

We did the FNA mapping, and unfortunately, Dr. Turek was unable to find any sperm although he said he got lots of good samples.

We moved forward with donor IUI’s and then donor IVF, but I’m still glad we exhausted all of our options before moving on.

I’m so glad Dr. T was able to help some of you. He was very sympathetic and a wonderful Dr., however once we were done with the FNA mapping and couldn’t move forward with Dr. T, he became very unavailable…we had many questions for him about donor sperm, RE’s, etc, but he was always too busy to talk to us…


#14

Thank you Nelly and Shey

Nelly, I am sorry Turek didn’t find sperm. I know it’s not much solace, but at least you know you tried everything you could.

Shey,
Schlegel gave us a 55% chance, actually. Turek said that one report said that sperm retrieval was successful in 70% of KFS. But I think righht now with my dh, the chance is realistically 55% like dr. S said. Cornell seems to do a great deal of these surgeries, and I think there was one study that surmised that their latest surgeries had higher rates partially because men were using medications to naturally increase testosterone before hand (like arimidiex or testalactone).

I would consider emailing Schlegel with your stats to see what percentage chance he gives you.


#15

Hi everyone, my husband doesn’t have Kleinfelters, but he has/had NOA. He has normal testosterone but low fsh and lh. We went to the urologist at my fertility clinic and he had vericocele surgery. 6 months later, still no sperm. Then he went on clomid and nothing. Then the doctor suggested HCG. He started it in March and in July he had 1 sperm. Then by the time I had my IVF in August, he had about 30, which was just what we needed!
I don’t know much about Kleinfelters, but have your doctors mentioned HCG? I read that taking HCG also may increase the chance of finding sperm during TESE if its still zero on a semen analysis. My husbands doctor did a study with Dr. Schlegel and I also read that the men were given HCG if they did not respond to the other meds.
Sorry for writing so much, but my dh and I went through one of the worse years of our lives struggling to to ANYTHING to find just a few sperm, so I understand. He luckily had the few that we needed and didn’t need TESE, but I will never forget what it was like. I wish all of you the best of luck.